School of the Special Hearts (The Lucky Few)

IMG_2745.JPG

People spend a lot of time talking about my “special heart “when they here what I do for a living. And then they double that when they here that I ABSOLUTELY LOVE what I do and who I do it with.

I spend a lot of time annoyed with the people who just don’t get it! They don’t see the beauty, the love, the pure joy that comes with spending my life with children who have disabilities. Sometimes it feels like they are living in a black and white world and just don’t see the color that is all around them because they spend their lives on the outside of my little world with these students. How could you not love them, and want to spend your time teaching and learning from them.

But then I read the book “The Lucky Few” by Heather Avis and it was like I was staring into the face of someone who just GOT IT! She was saying all the things I feel and she was preaching it to the world. She was shouting the worth of her children and all children that are born with down syndrome or other special needs for the world to hear. And the world needs to here it.

That doesn’t mean either of us were born “getting it” at one point or another the idea of spending our lives with children with a few extra chromosomes terrified us; Heather talks about how much life with her children, “wasn’t her plan” she just wanted a healthy baby as all new parents do. But that was not that plan God had for her and once she said that first yes to adopting her daughter she was diving head first into a world that holds so much beauty.

She looks at her relationship with God in new light around every corner of this book. She sees his hand in the darkness in the loss of the ability to have children and the beauty in the gift that he gave her through the children he provided. Because she just had to remember he’s got this. He knew she would be one of the people that “gets it” she would take the lives of these beautiful children he made, and yes I totally believe he made them with that sneaky little extra chromosome on purpose, and she would show the world just that. That they were created, that they were no ones accident.

With each of her  yes’s she learned a little more about herself and about the kind of heart that God has for her and for her children. She continually said yes to the hardest things he was asking of her and gained a beautiful life from those yes’s. She learned something new with each of her children.

I think one of the most beautiful things I learned from Heather was from her struggle to bond with her middle child Truly. If you know anything about this family you know that sassy miss True is the only Avis child that does not have down syndrome. She has the typical number of chromosomes but more than makes up for that with her amount of sass.

Heather shares the struggle she had to bond with this little girl with all the will power and beauty. To most people they would say oh a “normal” baby that would be the easy one to love and fall in love with. I love that she shares the struggles here just as much if not more than with her two children with down syndrome. In this light you can see how much you have to learn from all different types of children, they all open your heart and pour something different in.

Heather opens her heart to God and repeats over and over, “Yes, you got this. . . Yes you got this!” And because of that she has walked into the life made for her. I hope that even when I am staring into the darkness, facing what seems like an endless amount of NO’S, I can continue to repeat, “Yes, you got this!” And walk forward into the space that is given to me!

The Lucky Few the people that get to spend their lives learning and sharing with something with down syndrome are just that so lucky. It took one of what I like to call the “best good morning hugs in the world” The full body, wrap their legs around you, lay their head on your chest, good morning hugs that in my experience children with down syndrome are the absolute best at giving. It took me one of these hugs and I just knew. I was meant to be a part of this

The Lucky Few.

Heather Avis’ book comes out on World Down Syndrome Day, March 21st 2017. (How perfectly fitting right?) It is available for pre-order NOW! Go, buy it! Welcome yourself into the BEST club!

IMG_1125.JPG

 

I live for the good days!

 

I live for the good days, they may be few and far between and of course they never come for the whole class, over even two people on the same day. But whenever 1 person has that rare, beautiful shining day it makes the terrible days. Which of course come for every single student on the exact same day.

The days when you are not sure you are going to make it through the blow after blow that come from seemingly all directions when all the kids are having break downs over the fact that they are not at home with their dog or because I won’t let them eat the glue cap or the marker or the magnetic letters, Hell because I won’t let them eat anything except food, or because god forbid I won’t let them eat lunch after taking only 5 pretend bites and pouring your milk on the floor so you could avoid drinking it. And yes these are all reasons that we have had break downs in the last TWO weeks.!

But goodness gracious on the good days they are full of love and sweetness, when you can see them light up after learning something new, those are the days you know for sure you are where you are supposed to be.

I know, I know but how do you get through all of those bad days, holding out for a good one? Because those good days are like the perfect good morning hug, the full body, arms around your neck, feet off the floor kind of hugs. If you can’t get through all the bad days waiting for one persons good day this job probably isn’t for you, because hell those breakdowns come multiple times a day and the good days come much much more rarely.

Today was one of those days for one of my students, she has not had the easiest transition back into school, well really she has been the reigning “Queen of the hotmess” in our classroom, full of breaking eye glasses, spitting on teachers, throwing chairs and a whole hell of a lot of “fuck you Ms. Kelsi’s” but today on week 3 day two she had what we like to call a GREAT day! A day where her entire behavior chart had smiley faces, and that thing is broken down into 15 minute periods so 26, 26 15 minute periods and she was a great listener and kind friend through all of them!

You know what happens when you have a GREAT day in Ms. Kelsi’s SpedTacular classroom. You get to pick the dance at the end of the day, of course she chose the “Whip Nae Nae” you get about 15 hugs an Ms. Kelsi is going to tell everyone that will listen that you had a great day. Because my lovely little Queen of the hot mess you deserve to know how well you did, and better believe you just gave me the “good morning hug” feeling and I need to hold onto that as long as possible. Because who knows what Week 3 day 4 is going to bring!

How #Lucie is Light changed my life.

So up untill 2 years ago I had never even heard of the band Gungor, and then I started going to Bloom, a church that they founded, and to be honest I was quite proud of the fact that I had never heard of them before, I was proud to be the person going to church for church and not for the off-chance to meet a celebrity.

Ok I have to be honest it was pretty cool the nights that they would lead worship, we would get to sing their songs as a congregation and it was like a min-concert. I fell in love with Lisa Gungors voice when they would sing I would find myself hoping that she would sing more and more. But aside from that I never really jumped on the Gungor band wagon. I never bought any of their music, I never listened to them outside of church and when they held a concert I didn’t feel the need to go. But they were cool enough.

And then they had Lucie. . . their second daughter who happened to be born with down syndrome and the way that they handled that birth and transition was one of the most loving and God-Like things that I have ever witnessed. They made it clear that they were initially heartbroken, this little girl they held was not the little girl they had imagined for 9 months and probably longer, your dreams and visions for their life have to be altered (You can read more about that here http://www.gungormusic.com/blog/2014/10/lucie-is-ligh) But they also discovered something in her, something that is so pure and wonderful that radiates out of their every picture of her and story about her, and mostly from their new song. Light.

Light is on the Gungor’s newest album, One Wild Life, which is also one of my favorite and most played albums now, I sincerely hope everyone will go out and listen to it now it is beautifully done. But Light is gorgeous. .

They found a perfection in the imperfection, they were humbled and shocked, and in love with this little girl, who by all standards was DIFFERENT!

As a Special education teacher who watches parents handle the nuances and challenges of having a child who is by all means different and the way that they handle these things in varying manners, This realization was something that I clung too,

Thought I have never officially met the Gungor’s I have seen them from across the basement of Bloom, I have felt joy and sadness at their instagram pictures, I have heard stories from mutual friends, but I love these people I feel a sense of togetherness with the Gungor’s, they found their light in a beautiful little girl named Lucie who happened to be born in a way that will make the world forever stare at her, and call her different.

And I find my life over and over again in the students that God has placed in front of me, the students that have all sorts of differences, the students that are constantly fought against and put in the “other” category. I see God in these students, I see the ways that he can make all of us unique and the way that all of these challenges bring us closer to him, and closer as humans.

This is the way that God has made the human condition and I wish that more people could see the beauty in our differences the beauty in the little girl that has to have an adult come with her to third grade, the beauty in the little girl who has a hard time keeping her hands to herself, or the little boy who can’t see and has to use a cane to get around, beauty in the boy who has not learned to control his emotions and throws chairs when he gets upset but so desperately wants to fit in and be accepted by his peers.

These are my beauties these are the children that have completely changed their parents lives, the children that were supposed to have a different life, but have shaped and changed the world in so many ways.

These students are beautiful, these students are light.

Screen Shot 2015-09-09 at 5.49.28 PM

❤ Kelsi Rae