People spend a lot of time talking about my “special heart “when they here what I do for a living. And then they double that when they here that I ABSOLUTELY LOVE what I do and who I do it with.
I spend a lot of time annoyed with the people who just don’t get it! They don’t see the beauty, the love, the pure joy that comes with spending my life with children who have disabilities. Sometimes it feels like they are living in a black and white world and just don’t see the color that is all around them because they spend their lives on the outside of my little world with these students. How could you not love them, and want to spend your time teaching and learning from them.
But then I read the book “The Lucky Few” by Heather Avis and it was like I was staring into the face of someone who just GOT IT! She was saying all the things I feel and she was preaching it to the world. She was shouting the worth of her children and all children that are born with down syndrome or other special needs for the world to hear. And the world needs to here it.
That doesn’t mean either of us were born “getting it” at one point or another the idea of spending our lives with children with a few extra chromosomes terrified us; Heather talks about how much life with her children, “wasn’t her plan” she just wanted a healthy baby as all new parents do. But that was not that plan God had for her and once she said that first yes to adopting her daughter she was diving head first into a world that holds so much beauty.
She looks at her relationship with God in new light around every corner of this book. She sees his hand in the darkness in the loss of the ability to have children and the beauty in the gift that he gave her through the children he provided. Because she just had to remember he’s got this. He knew she would be one of the people that “gets it” she would take the lives of these beautiful children he made, and yes I totally believe he made them with that sneaky little extra chromosome on purpose, and she would show the world just that. That they were created, that they were no ones accident.
With each of her yes’s she learned a little more about herself and about the kind of heart that God has for her and for her children. She continually said yes to the hardest things he was asking of her and gained a beautiful life from those yes’s. She learned something new with each of her children.
I think one of the most beautiful things I learned from Heather was from her struggle to bond with her middle child Truly. If you know anything about this family you know that sassy miss True is the only Avis child that does not have down syndrome. She has the typical number of chromosomes but more than makes up for that with her amount of sass.
Heather shares the struggle she had to bond with this little girl with all the will power and beauty. To most people they would say oh a “normal” baby that would be the easy one to love and fall in love with. I love that she shares the struggles here just as much if not more than with her two children with down syndrome. In this light you can see how much you have to learn from all different types of children, they all open your heart and pour something different in.
Heather opens her heart to God and repeats over and over, “Yes, you got this. . . Yes you got this!” And because of that she has walked into the life made for her. I hope that even when I am staring into the darkness, facing what seems like an endless amount of NO’S, I can continue to repeat, “Yes, you got this!” And walk forward into the space that is given to me!
The Lucky Few the people that get to spend their lives learning and sharing with something with down syndrome are just that so lucky. It took one of what I like to call the “best good morning hugs in the world” The full body, wrap their legs around you, lay their head on your chest, good morning hugs that in my experience children with down syndrome are the absolute best at giving. It took me one of these hugs and I just knew. I was meant to be a part of this
The Lucky Few.
Heather Avis’ book comes out on World Down Syndrome Day, March 21st 2017. (How perfectly fitting right?) It is available for pre-order NOW! Go, buy it! Welcome yourself into the BEST club!